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Together we're bigger than ALS.

Built by lived experience to connect people, share knowledge, elevate patient voices, and support life with dignity and meaning beyond the diagnosis.

Connect, Learn, Thrive

Everything the ALS community needs — under one roof.

Connect

Find your people across every part of the ALS journey.

  • Under One Roof

    A unified digital space for coordination, events, and essential community resources.

  • Forums

    Engage in peer-to-peer discussions, share experiences, and find answers to your questions.

  • Connection Café

    Regular live meetups where members connect, discuss, and learn from one another.

Learn

Trusted knowledge, shaped by the community.

  • ALS Video & Podcast Library

    Curated educational content and community stories available whenever you need them.

  • Expert-Led Webinars

    Live sessions with medical professionals and specialists addressing key ALS topics.

  • ALS Directory

    A collection of organizations, clinics, nonprofits, and events serving the ALS community.

Thrive

Supporting the whole human… beyond the diagnosis.

  • Spiritual Health

    Resources and connections focused on holistic well-being and emotional resilience.

  • Financial Education & Fundraising

    Practical guidance to help individuals and families plan ahead and raise support.

  • Patient Cabinet

    All-patient executive team guiding the platform's growth to ensure every feature serves your real needs.

Find Your Community

People Living With ALS

Access tailored resources and connect with others navigating the same journey.

Explore Community

Those Who Love Them

Support for caregivers, family members, and friends through shared wisdom.

Explore Communities

Those Who Support Them

A hub for clinicians, researchers, and advocates working to make a difference.

Explore Communities

Community Stories

"When I got my diagnosis in June of this year, I felt alone. Here, I found connection."
Diane W.
Patients Community Forest, MS

Upcoming Events

Ready to join a community built by people who get it?

ALS.community is free, patient-led, and built around what matters most to the people living this experience every day.