Together we're bigger than ALS.
Built by lived experience to connect people, share knowledge, elevate patient voices, and support life with dignity and meaning beyond the diagnosis.
Connect, Learn, Thrive
Everything the ALS community needs — under one roof.
Connect
Find your people across every part of the ALS journey.
- Under One Roof
A unified digital space for coordination, events, and essential community resources.
- Forums
Engage in peer-to-peer discussions, share experiences, and find answers to your questions.
- Connection Café
Regular live meetups where members connect, discuss, and learn from one another.
Learn
Trusted knowledge, shaped by the community.
- ALS Video & Podcast Library
Curated educational content and community stories available whenever you need them.
- Expert-Led Webinars
Live sessions with medical professionals and specialists addressing key ALS topics.
- ALS Directory
A collection of organizations, clinics, nonprofits, and events serving the ALS community.
Thrive
Supporting the whole human… beyond the diagnosis.
- Spiritual Health
Resources and connections focused on holistic well-being and emotional resilience.
- Financial Education & Fundraising
Practical guidance to help individuals and families plan ahead and raise support.
- Patient Cabinet
All-patient executive team guiding the platform's growth to ensure every feature serves your real needs.
Find Your Community
People Living With ALS
Access tailored resources and connect with others navigating the same journey.
Explore CommunityThose Who Love Them
Support for caregivers, family members, and friends through shared wisdom.
Explore CommunitiesThose Who Support Them
A hub for clinicians, researchers, and advocates working to make a difference.
Explore CommunitiesCommunity Stories
"When I got my diagnosis in June of this year, I felt alone. Here, I found connection."
Upcoming Events
Ready to join a community built by people who get it?
ALS.community is free, patient-led, and built around what matters most to the people living this experience every day.